Living with the Eugenic Past: Anneke Lucassen

Hello, I’m Dr Kat Arney. This podcast is part of a miniseries of interviews with speakers from the 2022 annual conference of the Adelphi Genetics Forum - a learned society that aims to promote research and discussion concerning the scientific understanding of human heredity. Formerly known as the Galton Institute, and before that, the Eugenics Education Society, the society has changed its name to the Adelphi Genetics Forum to firmly reject and distance itself from the discredited and damaging ideas of its namesake, Francis Galton – widely viewed as the founder of eugenics. 

This year’s conference, titled ‘Living with the Eugenic Past’, brought together expert speakers to grapple with the problem of how best to live with the eugenic past. What are the demands of justice when it comes to the victims of eugenics? How should universities and other institutions involved in eugenics deal responsibly with that involvement? And can present-day biology education and research be improved to help safeguard the future from the mistakes of the past?

Anneke Lucassen is Professor of Genomic Medicine & Director of the Centre for Personalised Medicine at the University of Oxford and Professor of Clinical Genetics at the University of Southampton. Her talk, titled “Genomic Medicine, Diverse Data and the Language of Race, Ancestry and Ethnicity” explored the issues caused by a lack of diversity in genomic databases, and the challenges of addressing this in a way that doesn’t cause additional injustice and harm. I started by asking why it’s so necessary to do this work.

Thanks to Anneke Lucassen.

You can find out more about the Adelphi Genetics Forum, including their grants, awards and publications, at adelphigenetics.org You can check out the rest of this series on the Genetics Unzipped podcast feed – just search for Genetics Unzipped on Spotify or wherever you get your podcasts. This series was produced by the team at First Create The Media – that’s Kat Arney, Sally Le Page and Emma Werner, with help from Ed Prosser and Frankie Pike. Our music is Drops of H2O by J. Lang, licensed under Creative Commons. Thanks for listening, and goodbye.